One of Married At First Sight’s most memorable cast members, Elizabeth Sobinoff, is opening up about the harrowing health battle that is behind her numerous hair transformations.
The Australian MAFS star’s hairstyle has gone from platinum blonde to dark brown over recent weeks, switching from waist length extensions to a bob haircut.
The 28-year-old shared a raw photo depicting her hair loss – a result of her condition which attacks her immune system. Elizabeth, who has previously revealed to have porphyria and a form of lupus, shared a frank message alongside the photo of her scalp, highlighting the pressure she came under after appearing on the reality TV show.
“I have photosensitivity,” she previously told Who. “It’s an autoimmune disease and is a mild cousin of lupus.”
She says her weight can go up by six kilograms due to the condition.
“I get a lot of the lupus symptoms and when I’m in a flare-up, I burn, as if you’re holding fire to the skin,” Elizabeth says. “It’s hard for me to even be near a window.”
“I’ve wanted to do this for a while, post this picture,” she began.
“Back and forth I heard the comments of many of you talking the chit chat about my hair. Also, how often I change it up. I have periods in a flare up where I lose my hair.
“It’s horrendous when this happens. I used to cry and scream and shout because I didn’t know why I was waking up with clumps in my bed. This happens to many people out there suffering from chronic illness.”
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I’ve wanted to do this for awhile, post this picture. Back and fourth I heard the comments off many of you talking the chit chat about my hair. Also, how often I change it up. I have periods in a flare up where I loose my hair. So although many out there were losing sleep over my hair extensions ( they were funny to look at sometimes, must admit, loved the comments of ‘she thinks she looks natural’ my style then was to look as far from natural loves) and in blinks of an eye I’m short or have long black hair. I loose my hair occasionally and it’s horrendous when this happens I used to cry and scream and shout because I didn’t know why I was waking up with clumps in my bed. This happens to many people out there suffering from chronic illness or treatments. I’m talking here about my own personal experience, and why I have no real attachment to my hair. Why I like to change it up so often. So to my loves loosing the locks right now due to illness, although it varies how much we loose, I understand how upsetting it can be. I just don’t want people to be ashamed of these things. Much love and respect to you out there.
The hair colour chameleon says she has “no real attachment to my hair” and hoped her followers and those who suffer from similar conditions to embrace their journey.
“I just don’t want people to be ashamed of these things. Much love and respect to you out there,” she said.
This article originally appeared on InStyle
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