People with disability and their caregivers experienced profound impact and systemic neglect during and after the 2017 Northern Rivers floods, with many still unable to access stable housing, and at relatively high risk of post-traumatic stress disorder (PTSD) six months later, finds a University of Sydney study.
Published in BMJ Open, researchers surveyed and documented the experiences of more than 250 people either with disability or caregivers affected by the 2017 Northern Rivers flood event.
The study is one of the few Australian studies reporting on how people living with disability and caregivers are affected by disasters. The findings could help inform recovery efforts for the 2022 Eastern Australia floods.
Analysis found the flood event compounded existing physical and mental health issues and people with disability and caregivers were more severely affected by the flood event.
People with disability and their caregivers were twice as likely to have their homes flooded, as housing in flood prone areas is generally more affordable.
They were also four times more likely to be displaced, with a lack of access to safe long or short- term housing for more than six months.
Six months after the flood, many people with disability or caregivers were either highly distressed or twice or three times the odds of probable PTSD.
“The severity and frequency of floods are likely to increase—attention to the public health consequences of extreme weather events is urgently needed, especially for people with disability and caregivers,” said lead author Dr. Jodie Bailie from the University of Sydney Center for Rural Health, Faculty of Medicine and Health.
“The study identified multiple accessibility and public health issues which still persist—preventing vulnerable people from receiving the support they need.
“Caregivers play a vital role in providing support for people with disability and yet their experiences during disasters and its impact have received very limited attention.”
The Disability Royal Commission has heard concerns that people with disability are being overlooked or left behind in emergencies and are at much greater risk of neglect during emergencies. Submissions called for the need for people with disability to be included across all levels of emergency planning and response. The Commission is ongoing.
The researchers say there is a risk of history repeating itself among flood affected communities from the 2022 Eastern Australia floods.
“Floods expose and exacerbate existing social inequalities for people with disability and caregivers. We must ensure people with disability are included at all stages, including preparedness, response and recovery,” said Dr. Bailie.
Widespread barriers to accessing support
The study also revealed people with disability and caregivers often felt they were left to fend for themselves during and after the flood event. This included access to financial disaster relief, healthcare or social services. Long-term isolation and disruption to usual support networks also contributed to long-term mental health impacts and distress.
One of the greatest challenges was how evacuation information was issued, often failing to take into account the needs of people with disability.
One participant said deaf people were given oral directions that were not accompanied by sign language, and some reported not being able to hear warning sirens. These communication barriers affected how quickly people responded to the need to evacuate.
A lack of affordable accommodation for displaced people with disability and caregivers, which resulted in them living in unsafe accommodation which often had mold or structural damage.
“Nobody should be left behind during emergencies and disasters,” said co-author Associate Professor Michelle Villeneuve.
“This study shows more than ever, people with disability and caregivers need to be equal partners when designing impactful policy and resources that truly benefit them. Only then can real development and change occur.”
Associate Professor Villeneuve leads “Collaborating 4 Inclusion,” a research team dedicated to disability inclusive disaster risk reduction in Australia. The research brings emergency personnel together with people with disability, caregivers and support services to design inclusive tools that are helping to shape emergency responses.
The team also monitors the update of these tools in practice and measures the impact on the health and well-being of people with disability and caregivers during disasters.
Caregivers NSW CEO, Elena Katrakis, supports Professor Villeneuve’s advocacy for more inclusive disaster responses: “The recent severe flooding in northern NSW has again highlighted the particular challenges experienced by people with disability and their caregivers,”
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